Kernicterus Information and Resources

The following publications and websites are sources of valuable support and current information about kernicterus:

P.I.C.K.

Parents of Infants and Children with Kernicterus (PICK) is a parent-run non-profit organization dedicated to research, education, prevention and outreach for individuals with kernicterus and their families.


 

American Academy of Pediatrics (AAP) 

The AAP is a professional membership organization of 60,000 primary care pediatricians, pediatric medical sub-specialists and pediatric surgical specialists dedicated to the health, safety, and well-being of infants, children, adolescents and young adults.

Use the search box on the AAP site – type in a search term such as “kernicterus,” “jaundice,” or “hyperbilirubinemia” to find the latest authoritative articles that may help you.


 

The Joint Commission Sentinel Event Alert, Issue 31: Revised Guidance to Help Prevent Kernicterus  

The Sentinel Event Alert discusses the risk factors, root causes, risk reduction strategies and follow up recommendations to guide health care organizations in the prevention, early detection, and treatment of hyperbilirubinemia leading to kernicterus.


 

CDC – Centers for Disease Control and Prevention

Centers for Disease Control and Prevention: Jaundice & Kernicterus  

CDC offer free materials on their site including fact sheets and brochures for families, as well as guidelines and tools for healthcare providers.


 

PubMed Health Articles

Kernicterus  

Newborn jaundice 

PubMed Health specializes in reviews of clinical effectiveness research, with easy-to-read summaries for consumers as well as full technical reports. PubMed Health is a service provided by the National Center for Biotechnology Information (NCBI) at the U.S. National Library of Medicine (NLM).


 

Ratzan Law Group - Kernicterus Information Center 



References

Sugama, Seiichi; Soeda, Atsuhiro; Eto, Yoshikatsu; Magnetic Resonance Imaging in Three Children with Kernicterus, Pediatric Neurology, Volume 25, Issue 4, pg. 328-331, October 2001


Bhutani, Vinod K., Johnson, Lois; Kernicterus: A Preventable Neonatal Brain Injury, J. Arab Neonatal Forum 2005; 2: 12-23

McCandless, David W.; Kernicterus; Publisher: Springer, 2010; ISBN 1441965548, 9781441965547

Shapiro, SM, Definition of the Clinical Spectrum of Kernicterus and Bilirubin-Induced Neurologic Dysfunction (BIND); Journal of Perinatology 2004